Christpher's Story

The Child Within the Man
By Julie Telfer

ISBN: 978-1-84747-128-4
Published: 2007
Pages: 224
Key Themes: Kanner's autism, carer's story

Description

Christopher's Story was written for my son in the hope of raising awareness of (Kanner's) autism and severe chellenging bevahiour. It is primarily a story of love and of a determination to remain together as a family, when the only alternative offered was residential care. The book details our fight to secure schooling, accommodation and social services support - the later issue has yet to be resolved. I would truly love others to look beyond the disability and see Christopher for who he really is. I hope this book goes some way towards making this a reality. Julie Telfer

Book Extract

In September 1991 Christopher had reached the appropriate age for attending nursery, but it was during this time that we suddenly discovered that his complex needs would seriously impact upon the services which were readily available to other children. Nursery placements in the area were typically well sought after but as children with speech, social and learning difficulties are generally given priority, we were not concerned about securing a placement. The application form had been completed and returned and we were just waiting to discover if he would receive morning or afternoon provision.

An educational psychologist had asked to visit us at home but as other professionals often made the same request, we did not suspect that the visit was in any way connected to the nursery placement. However, it was not long into the visit before we were being informed that Christopher could not attend nursery as the Department had no resources available to fund the 1-1 assistant which he needed. The psychologist went on to stress that given the extent of Christopher's learning delay and social development, it might be more beneficial for us to delay nursery until the following year in any event. At which time the financial situation could prove to be different and he could simply start a year later than usual.

The situation was not ideal but we appeared to have no choice other than to accept it. After all, if there was no money available to fund an assistant, it would not be a safe environment for Christopher or the other children. It was disappointing to have spent the past few months preparing for this milestone, only for it to be delayed in this way and so we considered what other opportunities were available in the meantime. We were informed of a playgroup which was only a few miles from where we lived and decided to introduce Christopher. It was a friendly group and the children who attended were all pre-school age, with a variety of disabilities. The room which had been allocated was used as a typical play group on other days of the week, but on Wednesday mornings it was used by families such as ours. The room itself was enormous and whilst a small section housed a few tables and chairs from which the parents could watch the children playing, the remainder was filled with a lovely selection of toys, activities, bikes and other sit-and-ride vehicles.